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Clinical Trial Finder
Observational Enrolling
REACH: An observational study for people with CF who do not take CFTR modulators (REACH-OB-23)
The REACH observational study will collect health information on people with CF 12 years and older who do not take CFTR modulators.
This study involves no experimental drugs. Researchers will use the health information collected from this study to improve medical understanding of CF and to advance new therapies for people with CF.
This study may require lung function testing, blood draws, questionnaires and/or other measurements.
Email a research coordinator to express interest in participating in this study.
Eligibility
See other primary eligibility criteria for more information.
-
Age:
12 Years and Older -
Mutation(s):
No Mutation Requirement -
FEV1% Predicted:
No FEV1 Limit
For a more comprehensive list of eligibility criteria and details on this study, visit ClinicalTrials.gov.
Other Primary Eligibility Criteria
Potential participants will either have mutations that are not eligible to receive CFTR modulator therapy or are no longer taking CFTR modulator therapy due to intolerance or other reasons.
Study Design
-
Study Type: ?more info
Observational -
Randomized Study: ?more info
No -
Placebo Controlled: ?more info
No -
Length of Participation:
12 months -
Number of Study Visits:
4
Additional Information
-
Phase: ?more info
Not Applicable -
Study Sponsor: ?more info
Polineni, Deepika -
Study Drugs:
N/A
Study Sites
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Enrolling
Alabama
The Children's Hospital Alabama, University of Alabama at Birmingham, Birmingham, AL 35233
Contact
Heather Hathorne
Phone: +1 (205) 638-9568
Email: hyhathorne@uabmc.edu
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Enrolling
Arizona
Tucson Cystic Fibrosis Center, Tucson, AZ 85724
Contact
Elizabeth Ryan
Phone: +1 (520) 850-8688
Email: elizabethryan@arizona.edu
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Enrolling
Arizona
Phoenix Children's Hospital, Phoenix, AZ 85016
Contact
Natalia Argel
Phone: +1 (602) 933-0343
Email: Nargel@phoenixchildrens.com
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Enrolling Soon
Arkansas
University of Arkansas for Medical Sciences, Little Rock, AR 72205
Contact
Kathleen Hicks
Phone: +1 (501) 686-5527
Email: HicksKathleenT@uams.edu
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Enrolling Soon
California
Children's Hospital of Los Angeles, Los Angeles, CA 90027
Contact
Carmen Reyes
Phone: +1 (323) 361-2662
Email: mareyes@chla.usc.edu
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Enrolling
California
University of California, San Francisco, San Francisco, CA 94158
Contact
Ngoc Ly
Phone: +1 (415) 476-4979
Email: Ngoc.Ly@ucsf.edu
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Enrolling Soon
California
University of California San Diego, La Jolla, CA 92037
Contact
Jenna Mielke
Phone: +1 (619) 471-0822
Email: jmielke@health.ucsd.edu
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Enrolling Soon
California
Stanford University Medical Center, Palo Alto, CA 94304
Contact
Jacquelyn Spano
Phone: +1 (650) 721-1132
Email: jmzirbes@stanford.edu
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Enrolling Soon
California
University of California, San Francisco, SF, CA 94143
Contact
Courtney Moreno
Phone: +1 (415) 476-2984
Email: Courtney.Moreno@ucsf.edu
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Enrolling Soon
Colorado
National Jewish Health, Denver, CO 80206
Contact
Alix Wilson
Phone: +1 (303) 270-2517
Email: wilsona@njhealth.org
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Enrolling
Colorado
Children's Hospital Colorado, Aurora, CO 80045
Contact
Mary Cross
Phone: +1 (720) 777-4645
Email: mary.cross@childrenscolorado.org
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Enrolling Soon
Florida
University of Florida, Gainesville, FL 32610
Contact
Melissa Lingis
Phone: +1 (352) 294-8556
Email: melissa.lingis@peds.ufl.edu
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Enrolling Soon
Florida
Central Florida Pulmonary Group, Orlando, FL 32803
Contact
Desiree Serr
Phone: +1 (407) 841-1100
Email: dserr@cfpulmonary.com
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Enrolling Soon
Florida
Tampa General Hospital, Tampa, FL 33606
Contact
Andrew Marino
Phone: +1 (813) 844-4907
Email: amarino@tgh.org
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Enrolling Soon
Florida
University of Miami, Miami, FL 33136
Contact
Ylber (Ivan) Whitaker
Phone: +1 (305) 243-5545
Email: yiw2@miami.edu
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Enrolling Soon
Georgia
Children’s Healthcare of Atlanta and Emory University, Atlanta, GA 30329
Contact
Ashleigh Streby
Phone: +1 (404) 727-0305
Email: ashleigh.streby@emory.edu
-
Enrolling
Georgia
Augusta University, Augusta, GA 30912
Contact
Heidi Stapp
Phone: +1 (706) 721-7699
Email: hstapp@augusta.edu
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Enrolling
Idaho
Saint Luke's Cystic Fibrosis Center of Idaho, Boise, ID 83702
Contact
Lejla Godusevic
Phone: +1 (208) 381-4717
Email: godusevl@slhs.org
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Enrolling Soon
Illinois
Northwestern University, Chicago, IL 60611
Contact
Rachel Nelson
Phone: +1 (312) 695-0415
Email: rachel.nelson@northwestern.edu
-
Enrolling
Indiana
Riley Hospital for Children, Indianapolis, IN 46202
Contact
Lisa Bendy
Phone: +1 (317) 278-7152
Email: lbendy@iu.edu
-
Enrolling Soon
Kansas
University of Kansas Medical Center, Kansas City, KS 66160
Contact
Lawrence Scott
Phone: +1 (913) 588-4020
Email: lscott2@kumc.edu
-
Enrolling
Kentucky
University of Kentucky, Lexington, KY 40506
Contact
Chase Whitaker
Phone: +1 (859) 218-4810
Email: chase.whitaker@uky.edu
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Enrolling Soon
Louisiana
Tulane University, Metairie, LA 70001
Contact
Adrienne Savant
Phone: +1 (504) 896-9436
Email: asavant1@tulane.edu
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Enrolling Soon
Maryland
Johns Hopkins University, Baltimore, MD 21287
Contact
Jeanne Pinto
Phone: +1 (410) 955-9782
Email: jpinto4@jh.edu
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Enrolling Soon
Massachusetts
Boston Children's Hospital, Boston, MA 02115
Contact
Robert Fowler
Phone: +1 (617) 355-1834
Email: Robert.fowler@childrens.harvard.edu
-
Enrolling
Massachusetts
Massachusetts General Hospital, Boston, MA 02114
Contact
Margot Hardcastle
Phone: +1 (617) 726-3719
Email: mhardcastle@mgh.harvard.edu
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Enrolling Soon
Massachusetts
University of Massachusetts Memorial Health Care, Worcester, MA 01655
Contact
Jaclyn Longtine
Phone: +1 (508) 856-5472
Email: Jaclyn.Longtine@umassmed.edu
-
Enrolling
Michigan
University of Michigan, Michigan Medicine, Ann Arbor, MI 48109
Contact
Dawn Kruse
Phone: +1 (734) 615-3266
Email: dmkruse@med.umich.edu
-
Enrolling
Michigan
Wayne State University Harper University Hospital, Detroit, MI 48201
Contact
Debra Driscoll
Phone: +1 (313) 745-2221
Email: ddriscol@med.wayne.edu
-
Enrolling
Michigan
Corewell Health Helen DeVos, Grand Rapids , MI 49503
Contact
Andrew James
Phone: +1 (616) 267-0870
Email: andrew.james@corewellhealth.org
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Enrolling Soon
Minnesota
The Minnesota Cystic Fibrosis Center, Minneapolis, MN 55455
Contact
Participant Contact University of Minnesota
Phone: +1
Email: cftrials@umn.edu
-
Enrolling Soon
Missouri
St. Louis Children's Hospital, St. Louis, MO 63110
Contact
Irma Bauer
Phone: +1 (314) 747-2940
Email: irmabauer@wustl.edu
-
Enrolling
Montana
Billings Clinic , Billings, MT 59101
Contact
Jerimiah Lysinger
Phone: +1 (406) 238-5137
Email: JLysinger@billingsclinic.org
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Enrolling Soon
Nebraska
University of Nebraska Medical Center, Omaha, NE 68198
Contact
Michel Veit
Phone: +1 (402) 559-7585
Email: michel.veit@unmc.edu
-
Enrolling
New Jersey
Morristown Medical Center , Morristown, NJ 07960
Contact
Debra Connolly
Phone: +1 (973) 971-7293
Email: Debra.Connolly@atlantichealth.org
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Enrolling Soon
New York
The Cystic Fibrosis Center of Western New York, Buffalo, NY 14203
Contact
Nadine Caci
Phone: +1 (716) 323-0110
Email: ncaci@upa.chob.edu
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Enrolling Soon
New York
Columbia University Cystic Fibrosis Program, New York, NY 10032
Contact
Emily DiMango
Phone: +1 (212) 305-0290
Email: ead3@cumc.columbia.edu
-
Enrolling
New York
University of Rochester Medical Center Strong Memorial, Rochester, NY 14642
Contact
Barbara Johnson
Phone: +1 (585) 276-4123
Email: Barbara_Johnson@URMC.Rochester.edu
-
Enrolling
New York
Cohen Children's Medical Center of New York, New Hyde Park, NY 11042
Contact
Susan Galvin
Phone: +1 (516) 321-8606
Email: sgalvin@northwell.edu
-
Enrolling
New York
New York Medical College at Westchester Medical Center, Valhalla, NY 10595
Contact
Zachary Messer
Phone: +1 (914) 594-2352
Email: Zachary_Messer@nymc.edu
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Enrolling Soon
North Carolina
University of North Carolina at Chapel Hill, Chapel Hill, NC 27599
Contact
Julie Goudy
Phone: +1 (984) 974-2364
Email: julie_goudy@med.unc.edu
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Enrolling Soon
North Carolina
Atrium Health Wake Forest Baptist, Winston-Salem, NC 27157
Contact
Christian Smith
Phone: +1 (336) 173-8550
Email: chnsmith@wakehealth.edu
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Enrolling
Ohio
Dayton Children's Hospital, Dayton, OH 45404
Contact
Amy Jones
Phone: +1 (937) 641-3693
Email: Jonesa11@childrensdayton.org
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Enrolling Soon
Ohio
Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229
Contact
Kelly Thornton
Phone: +1 (513) 636-0604
Email: Kelly.Thornton@cchmc.org
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Enrolling Soon
Ohio
Cleveland Clinic Cystic Fibrosis Program, Cleveland, OH 44195
Contact
Dave Weaver
Phone: +1 (216) 445-6671
Email: weaverd@ccf.org
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Enrolling
Ohio
Rainbow Babies and Children's Hospital/University Hospitals Cleveland Medical Center, Cleveland, OH 44106
Contact
Primary RC & Participant Contact General Contact
Phone: +1
Email: RainbowCFResearch@UHhospitals.org
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Enrolling Soon
Ohio
Nationwide Children's Hospital, Columbus, OH 43205
Contact
Diana Gilmore
Phone: +1 (614) 722-4752
Email: diana.gilmore@nationwidechildrens.org
-
Enrolling
Oregon
Oregon Health & Science University, Portland, OR 97239
Contact
Jenna Bucher
Phone: +1 (503) 494-7807
Email: bucherj@ohsu.edu
-
Enrolling
Pennsylvania
Children's Hospital of Philadelphia, Philadelphia, PA 19104
Contact
Erin Donnelly
Phone: +1 (609) 781-0307
Email: Donnellye4@email.chop.edu
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Enrolling
Pennsylvania
Hershey Medical Center Pennsylvania State University, Hershey, PA 17033
Contact
Diane Kitch
Phone: +1 (717) 531-5646
Email: dkitch@pennstatehealth.psu.edu
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Enrolling
Pennsylvania
University of Pennsylvania, Philadelphia, PA 19104
Contact
Melissa Molter
Phone: +1 (215) 662-3116
Email: melissa.molter@pennmedicine.upenn.edu
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Enrolling Soon
Pennsylvania
University of Pittsburgh Medical Center, Pittsburgh, PA 15224
Contact
Elizabeth Hartigan
Phone: +1 (412) 692-7060
Email: elizabeth.hartigan@chp.edu
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Enrolling
South Carolina
Medical University of South Carolina, Charleston, SC 29425
Contact
Ashley Warden
Phone: +1 (843) 792-4349
Email: jonesash@musc.edu
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Enrolling Soon
South Carolina
Prisma Health Children's Hospital - Midlands, Columbia, SC 29203
Contact
Veronica Lipscomb
Phone: +1
Email: Veronica.Lipscomb@PrismaHealth.org
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Enrolling Soon
Tennessee
Vanderbilt University Medical Center, Nashville, TN 37232
Contact
Brijesh Patel
Phone: +1 (615) 343-4865
Email: brijesh.patel@vumc.org
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Enrolling Soon
Texas
University of Texas Southwestern / Children’s Health, Dallas, TX 75207
Contact
Keianna Brown
Phone: +1 (214) 456-5489
Email: Keianna.brown@utsouthwestern.edu
-
Enrolling
Texas
Cook Children's Medical Center, Fort Worth, TX 76104
Contact
Anna Reyes
Phone: +1 (682) 885-6589
Email: anna.reyes@cookchildrens.org
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Enrolling Soon
Texas
University of Texas Southwestern, Dallas, TX 75390
Contact
Ashley Keller
Phone: +1 (214) 648-6233
Email: Ashley.Keller@UTSouthwestern.edu
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Enrolling Soon
Texas
Dell Children's Medical Center of Central Texas, Austin, TX 78723
Contact
Kristina (Tina) Adrean
Phone: +1 (512) 324-9999
Email: Kadrean@ascension.org
-
Enrolling
Texas
Baylor College of Medicine, Houston, TX 77030
Contact
Tracy Mosely
Phone: +1 (832) 822-3309
Email: tlmosely@texaschildrens.org
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Enrolling
Utah
Adult Cystic Fibrosis Center at the University of Utah, Salt Lake City, UT 84112
Contact
Kristyn Packer
Phone: +1 (801) 520-5106
Email: kristyn.packer@hsc.utah.edu
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Enrolling Soon
Virginia
Virginia Commonwealth University, Richmond, VA 23219
Contact
Akilah Pierre-Louis
Phone: +1
Email: akilah.pierrelouis1@vcuhealth.org
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Enrolling Soon
Virginia
Inova L.J. Murphy Pediatric CF Program , Fairfax, VA 22031
Contact
Colleen Mann
Phone: +1 (703) 776-6485
Email: colleen.mann@inova.org
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Enrolling
Washington
Seattle Children's Hospital, Seattle, WA 98105
Contact
Sharon McNamara
Phone: +1 (206) 987-3921
Email: sharon.mcnamara@seattlechildrens.org
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Enrolling
Washington
University of Washington Medical Center, Seattle, WA 98195
Contact
Lauren Bartlett
Phone: +1 (503) 583-2869
Email: lrejman@uw.edu
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Enrolling Soon
Washington
Providence Medical Group, Cystic Fibrosis Clinic, Spokane, WA 99204
Contact
Joan Milton
Phone: +1 (509) 474-4323
Email: joan.milton@providence.org
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Enrolling Soon
West Virginia
West Virginia University - Morgantown, Morgantown, WV 26507
Contact
Tammy Clark
Phone: +1 (304) 293-5264
Email: tclark@hsc.wvu.edu
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Enrolling Soon
Wisconsin
University of Wisconsin, Madison, WI 53792
Contact
Melanie Nelson
Phone: +1 (608) 265-4617
Email: mnelson@pediatrics.wisc.edu
Email a research coordinator to express interest in participating in this study.
Eligibility
See other primary eligibility criteria for more information.
-
Age:
12 Years and Older -
Mutation(s):
No Mutation Requirement -
FEV1% Predicted:
No FEV1 Limit
For a more comprehensive list of eligibility criteria and details on this study, visit ClinicalTrials.gov.
Other Primary Eligibility Criteria
Potential participants will either have mutations that are not eligible to receive CFTR modulator therapy or are no longer taking CFTR modulator therapy due to intolerance or other reasons.

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