Page Title
Clinical Trial Finder
Observational Enrolling
An observational study of health outcomes of parents with cystic fibrosis (HOPE CF) (KAZMER22A0)
The HOPeCF observational study will evaluate the impact of parenthood on the health of people with CF.
Participants will complete questionnaires that assess their physical and mental health over 5 years after becoming a parent. Participation in the study can be completely remote and there are no study visits. If you are a new parent with CF who is not receiving care at the study sites listed below, please contact the CFF Clinical Trial Navigator (TrialNavigator@cff.org) if you are interested in participating in this study.
Email a research coordinator to express interest in participating in this study.
Eligibility
See other primary eligibility criteria for more information.
-
Age:
18 Years and Older -
Mutation(s):
No Mutation Requirement -
FEV1% Predicted:
No FEV1 Limit
For a more comprehensive list of eligibility criteria and details on this study, visit ClinicalTrials.gov.
Other Primary Eligibility Criteria
Eligible participants will be people with CF that have become a first-time parent (including foster parent, step parent, adoptive parent, or legal guardian) to a child under 5 years of age within 90 days prior to enrolling in the study.
Study Design
-
Study Type: ?more info
Observational -
Randomized Study: ?more info
No -
Placebo Controlled: ?more info
No -
Length of Participation:
5 years -
Number of Study Visits:
1
Additional Information
-
Phase: ?more info
Not Applicable -
Study Sponsor: ?more info
Kazmerski, Traci -
Study Drugs:
N/A
Study Sites
-
Enrolling
Alabama
University of Alabama at Birmingham, Birmingham, AL 35233
Contact
Kathryn Monroe
Phone: +1 (205) 638-5599
Email: kathrynmonroe@uabmc.edu
-
Enrolling
Colorado
National Jewish Health, Denver, CO 80206
Contact
Alix Wilson
Phone: +1 (303) 270-2517
Email: wilsona@njhealth.org
-
Enrolling Soon
Illinois
Northwestern University, Chicago, IL 60611
Contact
Rachel Nelson
Phone: +1 (312) 695-0415
Email: rachel.nelson@northwestern.edu
-
Enrolling
Indiana
Indiana University Medical Center, Indianapolis, IN 46202
Contact
Lisa Bendy
Phone: +1 (317) 278-7152
Email: lbendy@iu.edu
-
Enrolling
Kansas
University of Kansas Medical Center, Kansas City, KS 66160
Contact
Lawrence Scott
Phone: +1 (913) 588-4020
Email: lscott2@kumc.edu
-
Enrolling
Maryland
Johns Hopkins University, Baltimore, MD 21205
Contact
Jeanne Pinto
Phone: +1 (410) 955-9782
Email: jpinto4@jh.edu
-
Enrolling
Massachusetts
Massachusetts General Hospital, Boston, MA 02114
Contact
Margot Hardcastle
Phone: +1 (617) 726-3719
Email: mhardcastle@mgh.harvard.edu
-
Enrolling
Massachusetts
Boston Children's Hospital, Brigham & Women's Hospital, Boston, MA 02115
Contact
Robert Fowler
Phone: +1 (617) 355-1834
Email: Robert.fowler@childrens.harvard.edu
-
Enrolling
Michigan
University of Michigan Health System, Ann Arbor, MI 48109
Contact
Dawn Kruse
Phone: +1 (734) 615-3266
Email: dmkruse@med.umich.edu
-
Enrolling
Minnesota
The Minnesota Cystic Fibrosis Center, Minneapolis, MN 55455
Contact
Participant Contact University of Minnesota
Phone: +1
Email: cftrials@umn.edu
-
Enrolling
Missouri
Washington University School of Medicine, St. Louis, MO 63110
Contact
Irma Bauer
Phone: +1 (314) 747-2940
Email: irmabauer@wustl.edu
-
Enrolling
North Carolina
University of North Carolina at Chapel Hill, Chapel Hill, NC 27514
Contact
Primary RC Contact
Phone: +1
Email: cfclinicalresearch@med.unc.edu
-
Enrolling
Oregon
Oregon Health Sciences University, Portland, OR 97239
Contact
Jenna Bucher
Phone: +1 (503) 494-7807
Email: bucherj@ohsu.edu
-
Enrolling
Pennsylvania
University of Pennsylvania, Philadelphia, PA 19104
Contact
Melissa Molter
Phone: +1 (215) 662-3116
Email: melissa.molter@pennmedicine.upenn.edu
-
Enrolling
Pennsylvania
University of Pittsburgh Medical Center, Pittsburgh, PA 15224
Contact
Adrienne DeRicco
Phone: +1 (412) 692-8069
Email: adrienne.dericco2@upmc.edu
-
Enrolling
South Carolina
Medical University of South Carolina, Charleston, SC 29425
Contact
Sarah Shine
Phone: +1
Email: shinesa@musc.edu
-
Enrolling
Texas
University of Texas Southwestern, Dallas, TX 75390
Contact
Ashley Keller
Phone: +1 (214) 648-6233
Email: Ashley.Keller@UTSouthwestern.edu
-
Enrolling
Washington
University of Washington Medical Center, Seattle, WA 98195
Contact
Lauren Bartlett
Phone: +1 (503) 583-2869
Email: lrejman@uw.edu
Email a research coordinator to express interest in participating in this study.
Eligibility
See other primary eligibility criteria for more information.
-
Age:
18 Years and Older -
Mutation(s):
No Mutation Requirement -
FEV1% Predicted:
No FEV1 Limit
For a more comprehensive list of eligibility criteria and details on this study, visit ClinicalTrials.gov.
Other Primary Eligibility Criteria
Eligible participants will be people with CF that have become a first-time parent (including foster parent, step parent, adoptive parent, or legal guardian) to a child under 5 years of age within 90 days prior to enrolling in the study.
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