Data Use Disclaimer Legal Terms and Conditions
The information used to create these reports comes from the Cystic Fibrosis Foundation’s Patient Registry. The Patient Registry is comprised of information on patients who receive care at a Cystic Fibrosis Care Center (CF care center) and who have agreed to share their information with the CF Foundation. The reports derived from this information are not a rating or ranking of CF care centers and are provided for informational purposes only. These numbers tell only part of the story. The sharing of these reports is intended to strengthen the partnership between you and your care center staff and to educate and inspire action, rather than provoke judgment. You are encouraged to discuss your care center’s scores with your CF care center, and use this as an opportunity to work together to find ways to improve your or your child's health and make your care center the best it can be.
By using this portion of the Cystic Fibrosis Foundation Care Center Data website, you agree that you have read and understand the Legal Terms and Conditions and Privacy Statement contained on the website. You may print and download portions of material from the different areas of the Site solely for your own non-commercial use. No portion of the Content may be reprinted, republished, modified, or distributed in any form without the express written permission of CFF. You may not, and this Agreement does not give you permission to, reproduce, reverse engineer, decompile, disassemble, modify, transmit, sell, distribute, license or create derivative works with respect to the Site. If you have any questions about this agreement, please email firstname.lastname@example.org for more information before using the Site.